Born without a nose and affectionately nicknamed “Voldemort,” this little girl has physical features that set her apart from the average person. Her remarkable story challenges us to embrace the beauty and diversity that exists in the human form and redefines our understanding of what it means to be truly extraordinary.
She was born with an unusual disease.
Tessa was born without a nose due to a rare condition known as total congenital arhinia. Tessa has faced special difficulties since the beginning of her existence due to this strangeness, which only a small minority of people in the world experience. But she refused to let her illness define who she was and embraced life with incredible gusto.
When the nose does not form properly in the womb, arhinia occurs and this facial feature is missing. In Tessa’s case, her illness also means she lacks the olfactory system, the area of ​​the brain responsible for smelling things. Tessa’s parents thought she was a sweet and special daughter despite the difficulties she had to face.
Tessa’s parents, Grainne and Nathan Evans were overcome with emotion when they learned about Tessa’s facial malformation during their newborn baby’s ultrasound. They found out their daughter would be born without a nose five months into the pregnancy. Despite their initial astonishment, they decided to give Tessa as much care and support as they could.
Tessa’s experience included numerous treatments and surgeries.
Soon after the birth, she was sent to the intensive care unit, where a tracheostomy was performed to help her breathe. Tessa underwent cataract surgery when she was only eleven months old, adding to the difficulties she was experiencing at such a young age.
Two years later, Tessa underwent cosmetic surgery to have prostheses inserted under her skin to form the basis for an eventual artificial nose. Her parents did not take the decision to undergo the surgery lightly, but saw it as a chance to gradually improve Tessa’s appearance and make her profile more “normal”. This required the use of bone and skin grafts, a procedure usually recommended during adolescence when the face has reached its full size.
Tessa’s spirit endures all these physical challenges without wavering.
Tessa has developed coping mechanisms for living without a nose, having to breathe through her lips, and being denied the sense of smell that most of us take for granted. Tessa’s contagious happiness and love of life are a testament to her unwavering determination to live life to the fullest.
Her story has attracted interest from around the world and has motivated many people who are facing similar difficulties. Her strength and tenacity serve as a reminder that true beauty is found within each of us, not our outward appearance. With courage, bravery, and the help of loved ones, we can overcome any challenge because Tessa’s journey is a beacon of hope for us.
The triumph of the human spirit is highlighted by stories like Tessa’s in a society where it is easy to be consumed by negativity. Tessa’s journey is far from over and many people around the world continue to be inspired by her story.
Through Tessa’s story, we are reminded of the power that lies within each of us to overcome challenges, follow our dreams and change the lives of others.
In a world that often demands conformity, Tessa’s journey teaches us to be true to ourselves, embrace our individuality, and let our light shine brightly. Her story is a testament to the beauty of embracing our differences, celebrating our uniqueness, and finding strength in the face of adversity. Tessa’s courage and spirit will continue to inspire us to live life to the fullest and spread love and acceptance wherever we go.