Tessa Evans’ arrival on Valentine’s Day 2013 marked the beginning of a remarkable and unique journey that would inspire and touch hearts around the world. Born without a nose due to the rare Bosma arhinia microphthalmia syndrome (BAMS), Tessa’s story has been a testament to resilience, courage, and unwavering determination from the outset.
Tessa is one of less than 100 people worldwide who suffer from the same disease. Her “unrelenting courage” and “charming” demeanor are praised by her mother.
After becoming the first person to receive nasal implants eight years ago, Tessa is resilient and living the best life possible. Her circumstances do not deter her from “doing nothing”.
Individuals When Grainne and Nathan Evans’ Valentine’s baby was born without a nose, they were taken aback. There were no signs of any problems and their pregnancy went as expected.
Born without a nose, Tessa is an Irish native diagnosed with Bosma arhinia microphthalmia syndrome (BAMS).
According to the National Institutes of Health, fewer than 100 cases of the disease have been documented in medical history.
In addition, because the disease is so rare, it is difficult to treat.
It means Tessa can’t breathe through her nose or smell, but she can still sneeze, cough and catch a cold.
“It was funny, the very first time she sneezed, but we actually found out it was coming from your chest,” said Nathan, her father. “However, it was quite nice to have some normalcy here.
Tessa’s first weeks of life were difficult. She spent five weeks in intensive care.
When she was less than two weeks old, she underwent surgery to insert a tracheostomy tube into her mouth, allowing her to feed and sleep normally.
As a way to compensate for a lost limb, Tessa was the first person to receive a cosmetic nasal implant. Her age was only two years.
When a person needs a nose prosthesis, it is often completed in adolescence, when the growth of the face has stopped.
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According to her parents, the reason they had the surgery when she was young was to avoid the need for any future invasive procedures.
“It was an incredibly difficult decision for all of us, we love Tessa so much and thought she was absolutely beautiful the way she was,” Grainne said. “In the end, we decided to go ahead because it was a chance to gradually change her look over the years and normalize her profile without cutting up her face.”
Tessa’s facial surgery will finally be completed when she’s 13, and Grainne describes the lengthy process: “They say once they have the final fine nose in place, they’ll get light and shadow tattoos. to make a more detailed outline of her nose.” She said: “They can then drill into the nostrils and shade them to make them look real.
Grainne, a mother of three, wanted to be there for her child every moment of her recovery after making the difficult decision.
“But it was very stressful because I had never spent a night apart from Tessa and it was quite devastating to leave her at 11pm every night. Grianne continued, “I found comfort in knowing that I could arrive in minutes with just a call.” I would be there for her when she woke up the next day no matter what. It was also a gift.”
The donation process has not been easy over the years. One implant had to be removed. But ten-year-old Tessa remains resilient and content.
“I’m incredibly excited to get a new nose; it’s going to make me so happy.” “I won’t let my BAM stop me from doing anything,” Tessa declared two years ago. “It’s wonderful that I can’t smell the bad smells, but it’s disappointing that I can’t smell the good smells,” laugh the adorable sisters.
Tessa’s energy is improving now that she’s bigger, according to Grainne.
She inspires me every day with her boundless courage and zest for life. When she first saw her new nose in the elevator when we were in London, she said to me, “Mom, I love my new nose.”
People are inspired by the beauty and resilience of young, gorgeous Tessa as she embarks on a difficult, emotional journey.
In response to posts on her Facebook page, Tessa; Born Extraordinary, people are swooning over the adorable girl.
“Her face may not be typical, but in my opinion, she still has remarkable beauty. character and intelligence. “Keep going my dear,” writes one. “Tessa has grown up and is beautiful and looks happy,” says another.
A third person comments on the pictures on the Internet saying, “When I saw them, it made my day…”
Born without a nose due to Bosma arhinia microphthalmia syndrome (BAMS), Tessa Evans’ journey has been a testament to resilience, courage and unwavering determination. Her story, unique and inspiring, has won the hearts of many people around the world.
Born into a situation that confused her parents, Tessa presented unique challenges. Her parents, Grainne and Nathan Evans, navigated uncharted territory and made difficult decisions to ensure Tessa’s well-being and comfort.
From undergoing surgeries at an early age to being the first to receive a cosmetic nasal implant, Tessa’s journey to normalcy and her gradual facial reconstruction has been one of hope and perseverance. Her parents, who made tough decisions with Tessa’s best interests at heart, tried to give her a chance at a more normal appearance, which eventually allowed her to face life with confidence.
As Tessa approaches thirteen years old, she is in the final stages of facial surgery that promises to give her a more detailed and realistic looking nose. Devoted mother Grainne has stood by Tessa’s side throughout this difficult process, showing deep commitment and unwavering support for her daughter’s recovery and well-being.
Tessa’s strength and contagious spirit touched the lives of many and inspired admiration and heartfelt support from people around the world. Her charming demeanor and resilience in the face of adversity is a testament to the beauty of the human spirit and its ability to overcome challenges.
In response to the heartwarming posts on Tessa’s Facebook page, love and encouragement poured out over the impact of her story. People all over the world admire her courage, intelligence and unwavering positivity and recognize her as an extraordinary person.
Born to be extraordinary, Tessa Evans is a symbol of resilience and determination, teaching us an invaluable lesson in accepting life’s challenges with courage and grace. Her inspirational journey continues to resonate and touch the hearts of those who witness her unwavering spirit and unwavering zest for life.