Connor was three when specialists finally confirmed that the mobility problems we had been investigating were related to a genetic condition.

We had spent years hoping someone would tell us it was only a developmental delay.

It wasn’t.

I remember the examination room.

Connor playing with a plastic truck on the floor.

The doctor speaking carefully.

I looked at my little boy and could not understand how anyone could hear that information and see anything except the same child we had walked in with.

Patrick barely spoke during the drive home.